

Hey guys another update. Tomorrow marks 6 weeks of me dealing with these terrible ear and hearing issues. It hasn't resolved and this past week I've been having really bad migraines. The migraines have been on the other side of my head and so my doctor thinks they're unrelated to the ear issues. I'm really, really hoping the headaches are just due to all of the stress. And we are hoping that the ear issues are being caused by a very chronic case of eustachian tube dysfunction that is unable to heal itself and if the MRI reveals this we can make a hole in my eardrum and hopefully solve this issue. He doesn't want to do this now in the event it doesn't end up being issues with the eustachian tube. He said it is possible it could also be an acoustic neuroma which is usually a benign brain tumor that causes hearing loss, facial paralysis, eyes problems, balance issues, headaches, and more. If that's the case, then it's much more serious. He doesn't think it's AIED or NF1 or NF2 which I expressed concern about as NF1 and NF2 are genetic and he said it would be very unlikely that I have either of those three very bad diseases, so we're really hoping it's just a chronic case of eustachian tube dysfunction as I've dealt with this before. He said it's documented and my tests revealed that I've dealt with this two years before and he did see fluid in my ear just a couple of weeks ago. He said it's possible that the smaller end of the eustachian tube is either inflamed or clogged with fluid. He said even just 1-3 drops could be causing a block and thus creating all these problems. The steroids worked before but he said it's a gamble they don't always work. The front of my eustachian tube appears to be opened as revealed on the endoscope procedure he performed but the smaller end is just a couple millimeters wide and it's possible that could be the source of this problem. If it's an acoustic neuroma it's much more serious and those can be treated with chemotherapy and radiation but sometimes don't shrink and need to be removed resulting in a full loss of hearing to the ear as well as the risk of permanent facial paralysis and other complications. So I'm really hoping it's not an acoustic neuroma and that it's just the eustachian tube. Also I'm hoping that the terrible migraines I've been having on the right side of my head aren't anything serious and are just a result of the huge amount of stress and anxiety I've had this past month and a half. If all goes as planned I am to have an MRI of my brain and internal auditory canal this coming Monday and will hear back from my doctor this next Wednesday at the latest Thursday. I am hoping to have positive results and good news and that this is just chronic ETD and can be solved with having a small hole in my ear drum. Please be thinking positive thoughts for me so that I can manifest this being my eustachian tube and nothing more serious. I've been so afraid to get an MRI mostly because I don't want to lose anymore hearing than I already have and I know that brain scans are the loudest. Hopefully though there will be answers and good positive news next week and an easy treatment so that I can get back to life. I hope you are all doing well and I hope to be back very soon. This has been an incredibly stressful and scary time for me.